A mother has been left devastated after discovering her eight-year-old son’s drooping eye was in fact an incurable form of cancer.
Victoria Lizzy Morrison, from Chesthunt, Hetfordshire, thought that Kyle had suffered a stroke when the right side of his face suddenly started drooping last month.
But at hospital, Kyle was diagnosed with a rare and aggressive form of brain tumour, called diffuse intrinsic pontine glioma, and doctors delivered the devastating news that he has just a few months to live.
Only 20 to 30 UK children are affected by the incurable disease each year, and most survive for between one and four months after diagnosis.
Speaking to the Daily Mirror, Victoria admitted: ‘My world is literally falling apart.’
Kyle is today starting radiotherapy in an attempt to give him a few more months, but Victoria says she fears putting him through it is ‘selfish’.
The nightmare began when Victoria was called to pick Kyle up from Andrew Lanes Primary School a few hours after dropping him off.
The right side of his face had dropped, particularly the eye and the corner of his mouth was drooping, leading Victoria to fear he’d suffered a stroke.
Doctors at the Lister Hospital near Stevenage decided to keep the youngster overnight to keep an close eye on him, and the next day, put him through an MRI.
By the end of that afternoon, Victoria’s life turned upside down, when doctors informed her her son was suffering from a brain tumour.
The family were sent to Addenbrooke’s Hospital in Cambridge in order to carry further tests.
This is where they learned that Kyle was actually suffering from the very aggressive and always fatal diffuse intrinsic pontine glioma, a type of tumour that affects the brainstem.
Because this sort of tumour is located deep in the brain, it is inoperable, and no treatment is known as of yet.
Most children die within one to four months of diagnosis.
Victoria explained how frustrating it was to know that her child suffered from a disease with no cure. She also added her son looked ‘completely normal,’ making it harder to accept his prognosis.
She went from doctor to doctor in hopes of finding a second opinion, but was given the same answer by all: there was nothing they could do to help Kyle.
Now faced with the reality of her son’s prognosis, Victoria admits she’s feeling angry with the world, and wants to set up her own charity to raise funds for research into brain tumours.
Kyle is starting radiotherapy today in order to buy himself and his family a few more months together.
Victoria recalled a traumatic first appointment on September 23, where she had to watch her son scream from behind a window as he was fitted with a radiotherapy mask.
The mother said she had then questioned whether she was putting her son through hell for her own selfish motivations.
‘I thought to myself «why the hell am I putting you through this?»
‘What, so I can get a few extra months with you. Is that selfish? I don’t know?’
After Kyle is done with his treatment, he will attend school two days a week and do what he wants the rest of the time.
A Just Giving page has been set up in order to fund Kyle’s last wish.